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Gudrun Elin Rohde

Gudrun Elin Rohde

Professor

Department of Health and Nursing Sciences >

 

+47 38 14 18 46

+47 991 64 094

Office:
I2042 ( Universitetsveien 25, Kristiansand )
  • Gudrun is a professor in Health Sciences. She is a nurse, holds a master`s degree (2003) and a PhD (2010) in Health Sciences from the Faculty of Medicine, University of Oslo. Gudrun is also a research supervisor at the Department of Clinical research at Sorlandet Hospital
  • Gudrun heads the research-group Q-safe: Patient safety and quality in hospitals at the University of Agder. She is a board member on the national research networks LIVSFORSK, PROMiNET and Agder Academy of Sciences and Letters. Gudrun is also a member of several international research networks like EANS (fellow), EORTC-QOL-group and ISOQOL. Within ISOQOL she is a Co-chair of the Response Shift interest group (RS-SIG).
  • Gudrun`s clinical experience is in orthopedics, surgery, cancer care and management. She has 20 years’ experience of teaching and supervision of bachelor, master and PhD students, focusing on hospital care, palliative care, health promotion, philosophy of sciences and research methodology.

  • From December 2021, Gudrun Rohde will be an Honorary Professor at University College London (UCL), where she will continue her research at the Marie Curie Palliative Care Research Department, Division of Psychiatry. She was also an affiliate academic researcher at the same university in spring 2017.

Research interests

  • Our team has ongoing research on health promotion, quality of life and pain among adolescents and their families
  • Gudrun is also working with an international team from the US focusing on how Response-shift in Quality-of-Life research is not bias, but valuable information. Furthermore, a nomenclature for portraying the Response-shift research is suggested.
  • In a collaborative work with colleagues from UCL Rohde has published research on spiritual well-being and communication in palliative care
  • In a collaborative international group within EORTC quality of life group, we are  developing a quality-of-life questionnaire for adolescents and young adults with cancer
  • Our team are currently researching on Quality of life and Sexual Quality of Life in patients with axial Spondylarthritis
  • In a PhD-project we have recently started a study focusing on adolescents as next of kin in intensive nursing care

Courses and teaching

Philosophy of sciences, research methods, health promotion, patients reported outcome measures and quality of life

Projects

  • Start Young - Quality of life and pain in generations (UiA)
  • Spiritual well-being in palliative care (UiA)
  • Sexual Quality of Life and Health-Related Quality of Life in Patients with Axial Spondyloarthritis in ordinary outpatient clinic followed for 5 years (UiA)
  • Nursing care for ethnic minority patients - the patient and nurses` perspective (UiA)
  • Ethnic minority nursing students (UiA)
  • An investigation into the use of the European Organisation for Research and Treatment of Cancer (EORTC) core instrument and the possible need of a module for the assessment of Health-Related Quality of Life in Adolescents and Young Adults (AYA) with cancer (EORTC QOL-group, Brussels)
  • The EORTC Quality of Life Group: An international field study for the reliability and validity of the EORTC PATSAT-C33 core questionnaire and the EORTC OUT-PATSAT7 module (EORTC QOL-group, Brussels)

Scientific publications

  • Rojas-Concha, Leslye; Arrarrás, Juan Ignacio; Conroy, Thierry; Chalk, Tara; Guberti, Monica; Holzner, Bernhard; Husson, Olga; Kuliś, Dagmara; Shamieh, Omar; Piccinin, Claire; Puga, María José; Rohde, Gudrun E.; Groenvold, Mogens (2024). Acceptability and usefulness of the EORTC ‘Write In three Symptoms/Problems’ (WISP): a brief open-ended instrument for symptom assessment in cancer patients. Health and Quality of Life Outcomes. ISSN: 1477-7525. 22 (1). doi:10.1186/s12955-024-02244-z.
  • Reiråskag, Marie Aaslie; Brokke, Silje Støle; Rohde, Gudrun Elin; Bertelsen, Thomas Bjerregaard; Landrø, Nils Inge; Haaland, Vegard Øksendal (2024). Decision-making deficits in suicidal acute psychiatric patients: Insights from the Cambridge Gambling Task. Cogent Psychology. ISSN: 2331-1908. doi:10.1080/23311908.2024.2433851.
  • Schwartz, Carolyn E.; Borowiec, Katrina; Waldman, Ariel H.; Sutherland, Tai; Contreras, Briana; Abatan, Elizabeth; Huang, I-Chan; Rohde, Gudrun E.; Rapkin, Bruce D.; Skolasky, Richard L. (2024). Emerging priorities and concerns in the wake of the COVID-19 pandemic: qualitative and quantitative findings from a United States national survey. Frontiers in Public Health. ISSN: 2296-2565. 12doi:10.3389/fpubh.2024.1365657.
  • Robstad, Anja Nastasja; Paulsen, Anita; Vistad, Ingvild; Hott, Alexandra Christine; Berg, Kari Hansen; Øgård-Repål, Anita; Rabben, Jannicke; Kristoffersen, Eirunn W; Rohde, Gudrun Elin (2024). Experiences of pain communication in endometriosis: A meta-synthesis. Acta Obstetricia et Gynecologica Scandinavica. ISSN: 0001-6349. s 1 - 16. doi:10.1111/aogs.14995.
  • Rohde, Gudrun E.; Lehmann, Jens; Pilz, Micha J.; Rojas-Concha, Leslye; Holzner, Bernhard; King, Madeleine T.; Norman, Richard; Kemmler, Georg (2024). Norwegian and Swedish value sets for the EORTC QLU-C10D utility instrument. Quality of Life Research. ISSN: 0962-9343. s 1 - 15. doi:10.1007/s11136-024-03824-8.
  • Meyer, Klaus; Rohde, Gudrun E.; Frivold, Gro (2024). Relatives’ and Intensive Care Unit Personnel’s Perspectives of Care in Organ Donation: Protocol for a Multiple Methods Study. JMIR Research Protocols. ISSN: 1929-0748. 13doi:10.2196/55643.
  • Rohde, Gudrun E.; Helseth, Sølvi; Småstuen, Milada Cvancarova; Mikkelsen, Hilde Elisabeth Timenes; Skarstein, Siv; Haraldstad, Kristin (2024). The relationship between gender, psychosocial factors, pain, health literacy and health-related quality of life in parents of Norwegian adolescents one year into the COVID-19 pandemic. BMC Public Health. ISSN: 1471-2458. 24 (1). doi:10.1186/s12889-024-18525-7.
  • Schwartz, Carolyn E.; Huang, I-Chan; Rohde, Gudrun E.; Skolasky, Richard L. (2024). Uncovering the story within the story: a scoping review of response shift in qualitative research. Quality of Life Research. ISSN: 0962-9343. s 1 - 20. doi:10.1007/s11136-024-03803-z.
  • Skarstein, Siv; Helseth, Sølvi; Hagen, Milada; Haraldstad, Kristin; Rohde, Gudrun Elin; Mikkelsen, Hilde E. Timenes; Grasaas, Erik (2024). Use of Over-The-Counter Analgesics is Associated with Pain, Stress, and Quality of Life in Norwegian Adolescents: A Cross-Sectional Study. Children. ISSN: 2227-9067. 11 (10). doi:10.3390/children11101247.
  • Rohde, Gudrun E.; Johannessen, Berit; Maaseide, Markus; Flateland, Sylvi Monika; Skisland, Anne Valen -Sendstad; Moi, Ellen Benestad; Haraldstad, Kristin (2023). Being a nursing student during the coronavirus pandemic: a mixed methods study. BMC Nursing. ISSN: 1472-6955. 22 (1). doi:10.1186/s12912-023-01218-8.
  • Skogen, Vegard; Rohde, Gudrun E.; Langseth, Ranveig; Rysstad, Ole; Sørlie, Tore; Lie, Birgit (2023). Factors associated with health-related quality of life in people living with HIV in Norway. Health and Quality of Life Outcomes. ISSN: 1477-7525. 21doi:10.1186/s12955-023-02098-x.
  • Andresen, Gunvor S.; Johannessen, Berit A. T.; Rohde, Gudrun E.; Haraldstad, Kristin; Skisland, Anne Valen -Sendstad (2023). Læreres erfaringer med veiledning av sykepleierstudenter i kliniske studier gjennom covid-19 pandemien. Sykepleien Forskning. ISSN: 1890-2936. 18doi:10.4220/Sykepleienf.2023.92297.
  • Grasaas, Erik; Mikkelsen, Hilde Elisabeth Timenes; Haraldstad, Kristin; Helseth, Sølvi; Hagen, Milada; Skarstein, Siv; Rohde, Gudrun E. (2023). Pain in Adolescence: Maternal and Paternal Factors Affecting Adolescents’ Pain in Norway—A Cross-Sectional Study. Children. ISSN: 2227-9067. 10 (12). doi:10.3390/children10121915.
  • Skogen, Vegard; Langseth, Ranveig; Rohde, Gudrun Elin; Rysstad, Ole; Sørlie, Tore; Lie, Birgit (2023). Prevalence of mental distress and factors associated with symptoms of major depression among people living with HIV in Norway. AIDS Care. ISSN: 0954-0121. doi:10.1080/09540121.2023.2275043.
  • Grasaas, Erik; Rohde, Gudrun E.; Haraldstad, Kristin; Helseth, Sølvi; Småstuen, Milada Cvancarova; Skarstein, Siv; Mikkelsen, Hilde Elisabeth Timenes (2023). Sleep duration in schooldays is associated with health-related quality of life in norwegian adolescents: a cross-sectional study. BMC Pediatrics. ISSN: 1471-2431. 23 (1). doi:10.1186/s12887-023-04306-5.
  • Vivat, Bella; Speck, Peter; Uddin, Inayah; Rohde, Gudrun Elin; White, Nicola; Candy, Bridget; Jones, Louise; Tookman, Adrian; King, Michael (2023). What kinds of spiritual and/or religious interventions for the wellbeing of people living with terminal illnesses did RCTs investigate in 2011–22? Findings from a Cochrane …. BMJ Supportive & Palliative Care. ISSN: 2045-435X. 13 (1). doi:10.1136/spcare-2023-MCRC.47.
  • Rohde, Gudrun E.; Johannessen, Berit; Maaseide, Markus; Flateland, Sylvi Monika; Skisland, Anne Valen -Sendstad; Moi, Ellen Benestad; Haraldstad, Kristin (2022). Baccalaureate nursing students’ experiences of how the COVID-19 pandemic influenced learning – a mixed method study. BMC Nursing. ISSN: 1472-6955. 21 (1). doi:10.1186/s12912-022-00955-6.
  • Alkhaled, Tariq; Rohde, Gudrun E.; Lie, Birgit; Johannessen, Berit (2022). Beyond challenges and enrichment: a qualitative account of cross-cultural experiences of nursing patients with an ethnic minority background in Norway. BMC Nursing. ISSN: 1472-6955. 21doi:10.1186/s12912-022-01102-x.
  • Mikkelsen, Hilde Elisabeth Timenes; Småstuen, Milada Cvancarova; Haraldstad, Kristin; Helseth, Sølvi; Skarstein, Siv; Rohde, Gudrun E. (2022). Changes in health-related quality of life in adolescents and the impact of gender and selected variables: a two-year longitudinal study. Health and Quality of Life Outcomes. ISSN: 1477-7525. 20doi:10.1186/s12955-022-02035-4.
  • Lien, Anette Windsland; Rohde, Gudrun E. (2022). Coping in the role as next of kin of a person with a brain tumour: a qualitative metasynthesis. BMJ Open. ISSN: 2044-6055. 12doi:10.1136/bmjopen-2021-052872.
  • Rohde, Gudrun E.; Helseth, Sølvi; Skarstein, Siv; Småstuen, Milada Cvancarova; Mikkelsen, Hilde Elisabeth Timenes; Haraldstad, Kristin (2022). Health-related quality of life in parents of adolescents one year into the COVID-19 pandemic: a two-year longitudinal study. Health and Quality of Life Outcomes. ISSN: 1477-7525. 20doi:10.1186/s12955-022-02069-8.
  • Mikkelsen, Hilde Elisabeth Timenes; Skarstein, Siv; Helseth, Sølvi; Småstuen, Milada Cvancarova; Haraldstad, Kristin; Rohde, Gudrun E. (2022). Health-related quality of life, health literacy and COVID-19-related worries of 16- to 17-year-old adolescents and parents one year into the pandemic: a cross-sectional study. BMC Public Health. ISSN: 1471-2458. 22doi:10.1186/s12889-022-13737-1.
  • Schwartz, Carolyn E.; Huang, I-Chan; Rohde, Gudrun E.; Skolasky, Richard L (2022). Listening to the elephant in the room: response-shift effects in clinical trials research. Journal of Patient-Reported Outcomes. ISSN: 2509-8020. 6 (1). doi:10.1186/s41687-022-00510-6.
  • Alkhaled, Tariq; Rohde, Gudrun E.; Lie, Birgit; Johannessen, Berit (2022). Navigating the care between two distinct cultures: a qualitative study of the experiences of Arabic-speaking immigrants in Norwegian hospitals. BMC Health Services Research. ISSN: 1472-6963. 22s 1 - 11. doi:10.1186/s12913-022-07833-6.
  • Rohde, Gudrun E.; Helseth, Sølvi; Mikkelsen, Hilde Elisabeth Timenes; Skarstein, Siv; Småstuen, Milada Cvancarova; Haraldstad, Kristin (2022). Stress, pain, and work affiliation are strongly associated with health-related quality of life in parents of 14-15-year-old adolescents. Health and Quality of Life Outcomes. ISSN: 1477-7525. 20 (1). s 1 - 10. doi:10.1186/s12955-021-01913-7.
  • Flølo, Tone Nygaard; Gjeilo, Kari Hanne; Andersen, John Roger; Haraldstad, Kristin; Hjelmeland, Inger Helen Hardeland; Iversen, Marjolein M.; Løyland, Borghild; Norekvål, Tone Merete; Riiser, Kirsti; Rohde, Gudrun E.; Urstad, Kristin Hjorthaug; Utne, Inger; Beisland, Elisabeth Grov (2022). The impact of educational concerns and satisfaction on baccalaureate nursing students’ distress and quality of life during the Covid-19 pandemic; a cross-sectional study. BMC Nursing. ISSN: 1472-6955. 21 (1). doi:10.1186/s12912-022-00962-7.
  • Grasaas, Erik; Skarstein, Siv; Mikkelsen, Hilde Elisabeth Timenes; Småstuen, Milada Cvancarova; Rohde, Gudrun E.; Helseth, Sølvi; Haraldstad, Kristin (2022). The relationship between stress and health-related quality of life and the mediating role of self-efficacy in Norwegian adolescents: a cross-sectional study. Health and Quality of Life Outcomes. ISSN: 1477-7525. 20s 1 - 9. doi:10.1186/s12955-022-02075-w.
  • Rotmund, Maria; Sodergren, Samantha C; Rohde, Gudrun E.; de Rojas, Teresa; Paratico, Gloria; Albini, Giorgia; Mur, Johanna; Darlington, Anne-Sophie; Majorana, Alessandra; Riedel, David (2022). Updating our understanding of health-related quality of life issues in children with cancer: a systematic review of patient-reported outcome measures and qualitative studies. Quality of Life Research. ISSN: 0962-9343. doi:10.1007/s11136-022-03259-z.
  • Moi, Ellen Benestad; Skisland, Anne Valen -Sendstad; Johannessen, Berit; Haraldstad, Kristin; Rohde, Gudrun E.; Flateland, Sylvi Monika (2022). Working as a nurse in community health services during Covid-19: a qualitative study. BMC Nursing. ISSN: 1472-6955. 21 (1). doi:10.1186/s12912-022-01141-4.
  • Astrup, Guro Lindviksmoen; Rohde, Gudrun E.; Rimehaug, Stein Arne; Andersen, Marit Helen; Bernklev, Tomm; Bjordal, Kristin; Falk, Ragnhild Sørum; Jørgensen, Nina Marie Høyning; Stavem, Knut; Tollisen, Anita; Amdal, Cecilie Delphin (2021). Comparing the use of patient-reported outcomes in clinical studies in Europe in 2008 and 2018: a literature review. Quality of Life Research. ISSN: 0962-9343. doi:10.1007/s11136-021-02946-7.
  • Sodergren, Samantha C; Wheelwright, Sally; Fitzsimmons, Deborah; Efficace, Fabio; Sprangers, Mirjam A. G.; Fayers, Peter; Harle, Amelie; Schmidt, Heike; Bottomley, Andrew; Darlington, Anne-Sophie; Benson, Charlotte; Bredart, Anne; Hentschel, Leopold; Arraras, Juan Ignacio; Ioannidis, Georgios; Leahy, Michael G.; Lugowska, Iwona; Nicolatou-Galitis, Ourania; Petranovic, Duska; Rohde, Gudrun E.; Vassiliou, Vasilis; Johnson, Colin D. (2021). Developing Symptom Lists for People with Cancer Treated with Targeted Therapies. Targeted oncology. ISSN: 1776-2596. 16s 95 - 107. doi:10.1007/s11523-020-00769-z.
  • Fegran, Liv; Johannessen, Berit; Ludvigsen, Mette Spliid; Westergren, Thomas; Høie, Magnhild; Slettebø, Åshild; Rohde, Gudrun Elin; Helseth, Sølvi; Haraldstad, Kristin (2021). Experiences of a non-clinical set of adolescents and young adults living with persistent pain: a qualitative metasynthesis. BMJ Open. ISSN: 2044-6055. 11 (4). s 1 - 11. doi:10.1136/bmjopen-2020-043776.
  • Carolyn E, Schwartz; Rohde, Gudrun E.; Elijah, Biletch; Richard BB, Stuart; I-Chan, Huang; Joseph, Lipscomb; Roland B, Stark; Richard L, Skolasky (2021). If it's information, it's not "bias": a scoping review and proposed nomenclature for future response-shift research. Quality of Life Research. ISSN: 0962-9343. doi:10.1007/s11136-021-03023-9.
  • Berg, Kari Hansen; Rohde, Gudrun Elin; Pripp, Are Hugo; Prøven, Anne; Benestad, Espen Esther Pirelli; Østensen, Monika Elisabeth; Haugeberg, Glenn (2021). Increased proportion of comorbidities but no deterioration of sexual quality of life during a 5-year follow-up in patients with axial spondyloarthritis in the biologic treatment era. Rheumatology. ISSN: 1462-0324. 60 (9). s 4112 - 4120. doi:10.1093/rheumatology/keaa887.
  • Mikkelsen, Hilde Timenes; Haraldstad, Kristin; Helseth, Sølvi; Skarstein, Siv; Småstuen, Milada Cvancarova; Rohde, Gudrun Elin (2021). Pain and health-related quality of life in adolescents and the mediating role of self-esteem and self-efficacy: a cross-sectional study including adolescents and parents. BMC Psychology. ISSN: 2050-7283. 9 (1). s 1 - 16. doi:10.1186/s40359-021-00629-z.
  • Beisland, Elisabeth Grov; Gjeilo, Kari Hanne; Andersen, John Roger; Bratås, Ola; Bø, Bodil; Haraldstad, Kristin; Hjelmeland, Inger Helen Hardeland; Iversen, Marjolein M.; Løyland, Borghild; Norekvål, Tone Merete; Riiser, Kirsti; Rohde, Gudrun E.; Urstad, Kristin Hjorthaug; Utne, Inger; Flølo, Tone Nygaard (2021). Quality of life and fear of COVID-19 in 2600 baccalaureate nursing students at five universities: a cross-sectional study. Health and Quality of Life Outcomes. ISSN: 1477-7525. 19doi:10.1186/s12955-021-01837-2.
  • Mikkelsen, Hilde Elisabeth Timenes; Haraldstad, Kristin; Helseth, Sølvi; Skarstein, Siv; Småstuen, Milada Cvancarova; Rohde, Gudrun E. (2020). Health‑related quality of life is strongly associated with self‑efficacy, self‑esteem, loneliness, and stress in 14–15‑year‑old adolescents: a cross‑sectional study. Health and Quality of Life Outcomes. ISSN: 1477-7525. 18doi:10.1186/s12955-020-01585-9.
  • Rohde, Gudrun E.; Berg, Kari Ellen; Pripp, Are Hugo; Prøven, Anne; Haugeberg, Glenn (2019). No deterioration in health-related quality of life in patients with axial spondyloarthritis followed for 5 years in ordinary outpatient clinics in the biological treatment era.. Quality of Life Research. ISSN: 0962-9343. 29 (1). s 99 - 107. doi:10.1007/s11136-019-02308-4.
  • Johannessen, Berit; Høie, Magnhild; Haraldstad, Kristin; Helseth, Sølvi; Fegran, Liv; Westergren, Thomas; Slettebø, Åshild; Rohde, Gudrun E. (2020). School nurses’ and teachers’ perceptions of pain in young immigrants living in Norway. International Journal of Migration, Health and Social Care. ISSN: 1747-9894. 16 (1). doi:10.1108/IJMHSC-01-2019-0005.
  • Rohde, Gudrun E.; Young, Teresa; Winstanley, Julie; Arraras, Juan Ignacio; Black, Kath; Boyle, Fran; Bredart, Anne; Costantini, Anna; Guo, Jingbo; Irarrazaval, Maria Elisa; Kobayashi, Kunihiko; Kruizinga, Renske; Navarro, Mariana; Omidvari, Sepideh; Serpentini, Samantha; Spry, Nigel; van Laarhoven, Hanneke; Yang, Grace; Vivat, Bella (2019). Associations between sex, age and spiritual well‐being scores on the EORTC QLQ‐SWB32 for patients receiving palliative care for cancer: A further analysis of data from an international validation study. European Journal of Cancer Care. ISSN: 0961-5423. 28:e13145 (6). s 1 - 11. doi:10.1111/ecc.13145.
  • Rohde, Gudrun E.; Söderhamn, Ulrika; Vistad, Ingvild (2019). Reflections on communication of disease prognosis and life expectancy by patients with colorectal cancer undergoing palliative care: a qualitative study. BMJ Open. ISSN: 2044-6055. 9 (3). doi:10.1136/bmjopen-2018-023463.
  • Berg, Kari Hansen; Rohde, Gudrun E.; Prøven, Anne; Benestad, Esben Esther Pirelli; Østensen, Monika Elisabeth; Haugeberg, Glenn (2019). Sexual Quality of Life in Patients with Axial Spondyloarthritis in the Biologic Treatment Era. Journal of Rheumatology. ISSN: 0315-162X. 46 (9). s 1075 - 1083. doi:10.3899/jrheum.180413.
  • Sodergren, Samantha C; Husson, Olga; Rohde, Gudrun E.; Tomasewska, Iwona M; Vivat, Bella; Yarom, Noam; Griffiths, Helen; Darlington, Anne-Sophie (2018). A Life Put on Pause: An Exploration of the Health-Related Quality of Life Issues Relevant to Adolescents and Young Adults with Cancer. Journal of Adolescent and Young Adult Oncology. ISSN: 2156-5333. 7 (4). s 453 - 464. doi:10.1089/jayao.2017.0110.
  • Sodergren, Samantha C; Husson, Olga; Rohde, Gudrun E.; Tomaszewska, Iwona M; Griffiths, Helen; Pessing, Aya; Yarom, Noam; Hooker, L; Darlington, Anne-Sophie; Din, Amy (2018). Does age matter? A comparison of health-related quality of life issues of adolescents and young adults with cancer.. European Journal of Cancer Care. ISSN: 0961-5423. 6 (27). doi:10.1111/ecc.12980.
  • Haraldstad, Kristin; Rohde, Gudrun E.; Stea, Tonje Holte; Lohne-Seiler, Hilde; Hetlelid, Ken Joar; Paulsen, Gøran; Berntsen, Sveinung (2017). Changes in health-related quality of life in elderly men after 12 weeks of strength training. European Review of Aging and Physical Activity. ISSN: 1813-7253. 14 (1). doi:10.1186/s11556-017-0177-3.
  • Berg, Kari Ellen; Rohde, Gudrun E.; Prøven, Anne; Almås, Elsa Mari; Benestad, Esben Esther Pirelli; Østensen, Monika Elisabeth; Haugeberg, Glenn (2017). Exploring the relationship between demographic and disease-related variables and perceived effect of health status on sexual activity in patients with axial spondyloarthritis: associations found only with non-disease variables. Scandinavian Journal of Rheumatology. ISSN: 0300-9742. 46 (6). s 461 - 467. doi:10.1080/03009742.2017.1279684.
  • Høie, Magnhild; Haraldstad, Kristin; Rohde, Gudrun E.; Fegran, Liv; Westergren, Thomas; Helseth, Sølvi; Slettebø, Åshild; Johannessen, Berit (2017). How school nurses experience and understand everyday pain among adolescents. BMC Nursing. ISSN: 1472-6955. 16 (1). doi:10.1186/s12912-017-0247-x.
  • Sodergren, Samantha C; Husson, Olga; Robinson, Jessica; Rohde, Gudrun E.; Tomaszewska, Iwona M; Vivat, Bella; Dyar, Rebecca; Darlington, Anne-Sophie (2017). Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer. Quality of Life Research. ISSN: 0962-9343. 26 (7). s 1659 - 1672. doi:10.1007/s11136-017-1520-x.
  • Vivat, Bella; Young, Teresa; Winstanley, Julie; Arraras, Juan I; Black, Kenny; Boyle, Frances M.; Bredart, A; Costantini, A; Guo, J; Irarrazaval, Maria Elisa; Kobayashi, K; Kruizinga, R; Navarro, M; Omidvari, S; Rohde, Gudrun E.; Serpentini, S; Spry, Nigel; van Laarhoven, HWM; Yang, G (2017). The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer.. European Journal of Cancer Care. ISSN: 0961-5423. 26 (6). doi:10.1111/ecc.12697.
  • Rohde, Gudrun E.; Berg, Kari Ellen; Prøven, Anne; Haugeberg, Glenn (2017). The relationship between demographic- and disease-related variables and health-related quality of life in patients with axial spondyloarthritis. BMC Musculoskeletal Disorders. ISSN: 1471-2474. 18 (1). doi:10.1186/s12891-017-1693-z.
  • Janssen, S.; Husson, Olga; Sødergren, S.; Rohde, Gudrun Elin; Darlington, AS (2024). Core patient-centered outcomes for Adolescents and Young Adults (AYAs) with cancer: A comprehensive literature review from the STRONG-AYA project/consortium.
  • Rohde, Gudrun Elin; Haraldstad, Kristin; Hagen, Milada; Mikkelsen, Hilde E. Timenes; Skarstein, Siv; Helseth, Sølvi (2024). Health-related quality of life in parents of adolescents assessed over a four-years period (2019, 2121 and 2023).
  • Carolyn E, Schwartz; I-Chan, Huang; Rohde, Gudrun Elin; Skolasky, Richard L. (2024). Uncovering the story within the story: A scoping review of response shift in qualitative research.
  • Carolyn E, Schwartz; Huang, I-Chan; Rohde, Gudrun Elin; Skolasky, Richard L (2024). Emerging priorities and concerns in the wake of the COVID-19 pandemic: Qualitative and quantitative findings from a United States national survey.

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